Andras erfarenheter
Jag lägger ju alla bilder på Elmers prickar i ett album på Facebook. På Facebook har jag flera hundra Histio-vänner så jag har hunnit få en del kommentarer från andra LCH-mammor under dessa 4 månader som Elmer haft sina utslag (4 månader om en vecka).
Här är några kommentarer:
"His rash looks very similar to ****'s rash. Scattered throughout his body. **** is currently on Ara C and Vincristing with pred. **** gets it in the same areas that are typical for lch but it also has random rash scattered. The chemo takes it away but so far it always creeps back and has not gone into a remission ever. One biopsy done on his leg came back negative but the one on his head came out positive. I just think there is more to it than we know about. It has been very frustrating. Best of luck to you and Elmer."
**
"My daughter's histio looked like that too"
**
"This is exactly how my sons lesions look when he is having an outbreak:( ((hugs))"
**
Idag skrev jag att vi fortfarande inte har något bevis för att det är LCH och fick denna kommentaren av en mamma till en liten änglaflicka som tillslut avled av sin LCH:
"It is, My daughter had the exact same symptoms with her skin involvement, under her arms, between her legs, on her head, it came and went, we thought it was a heat rash for a long time.
They finally diagnosed it when it affected her lymph system and her neck swelled up really huge."
Så för henne, precis som för mig, är Elmers utslag solklart LCH.
Här är några kommentarer:
"His rash looks very similar to ****'s rash. Scattered throughout his body. **** is currently on Ara C and Vincristing with pred. **** gets it in the same areas that are typical for lch but it also has random rash scattered. The chemo takes it away but so far it always creeps back and has not gone into a remission ever. One biopsy done on his leg came back negative but the one on his head came out positive. I just think there is more to it than we know about. It has been very frustrating. Best of luck to you and Elmer."
**
"My daughter's histio looked like that too"
**
"This is exactly how my sons lesions look when he is having an outbreak:( ((hugs))"
**
Idag skrev jag att vi fortfarande inte har något bevis för att det är LCH och fick denna kommentaren av en mamma till en liten änglaflicka som tillslut avled av sin LCH:
"It is, My daughter had the exact same symptoms with her skin involvement, under her arms, between her legs, on her head, it came and went, we thought it was a heat rash for a long time.
They finally diagnosed it when it affected her lymph system and her neck swelled up really huge."
Så för henne, precis som för mig, är Elmers utslag solklart LCH.
Kommentarer
Postat av: Lotta Rhodin
<3 PEPPANDE&KÄRLEKSFULLA TANKAR&KRAMAR <3 Elmer ska INTE den vägen vandra!!!!!!
Postat av: Amanda & Oscar
Nej nu fick jag en klump i bröstet.. Men Elmer SKA bli frisk!!! Tur att han har dig som mor! Kram på er <3
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